From 9 to 12 April 2019, the six leading sickle-cell doctors from the partner countries* of Monaco’s Official Development Assistance are holding a workshop in the Principality. The workshop has two aims:
- to formalise a network of sickle-cell professionals
- to review initial feedback following the publication of a standardised guide on treating the disease in June 2018
The workshop was opened today by Ms Isabelle Rosabrunetto, Director General of the Ministry of Foreign Affairs and Cooperation.
Over the course of these four days of deliberations, the doctors will work on formally setting up their network of sickle-cell professionals in West Africa and Madagascar. They will also consider the dissemination of the guide in their own countries, via social media, to promote a more decentralised approach to treating the disease, which should become possible in small healthcare centres, very close to patients.
In parallel, Monaco’s Official Development Assistance visited Mauritania at the end of March in support of sickle-cell charities to lead a workshop on proposal writing. The visit also provided an opportunity for advocacy with the Ministry of Health and parliamentarians in Mauritania on patient care, improved access to drugs and treatment, and better living conditions for patients.
Sickle-cell disease is a condition that affects haemoglobin and is the most common genetic disorder in the world, with 50 million carriers of the sickle-cell trait according to WHO. Combatting the disease is a flagship programme of Monaco’s Official Development Assistance, which has focused on this issue since 2007.
*: *: Burkina Faso, Madagascar, Mali, Mauritania, Niger, and Senegal.